Our vision is to help transform the way hemophilia care is delivered in the developing world, where the vast majority of people with hemophilia have limited or no access to diagnosis and treatment.
That’s why in 2014, together with Sobi, we pledged to donate up to one billion IUs of clotting factor over 10 years, with up to 500 million IUs to the World Federation of Hemophilia (WFH) Humanitarian Aid Program over a period up to five years.
These donations have been life-changing for patients and their families. Read their stories:
“His life has changed.”
With consistent and predictable availability of factor therapy, doctors can now perform corrective surgeries that were unthinkable until now and often with life-changing results. Charan came to a treatment center in India after an accident that had left him paralyzed in all four limbs. After corrective surgery and physiotherapy, he is able to walk again.
"He has become more active."
Hakob's parents knew something was wrong when his legs would swell up for no reason. It wasn’t until he had an accident while playing outside that they learned he had hemophilia. Today, Hakob and his family are able to go to the hospital for treatment of his bleeds with factor therapy, which has enabled Hakob to be a more active and energetic young boy. Boys in countries like Armenia can now receive on-demand treatment with each bleed.
“I’m so happy to have a mother like her.”
In Jakarta, a predictable supply of factor therapy is allowing physicians to provide more comprehensive treatment to patients with hemophilia. More patients are being identified now that there is factor therapy available to treat them. This mother, who carried her son to and from school each day to try to prevent swelling in his joints, is now able to bring him to the hospital for treatment of all his bleeds.
“I have witnessed the profound impact that donated factor has on those living with hemophilia in developing countries, and we thank Bioverativ and Sobi for their visionary leadership.”
Alain Weill, WFH President
These stories provide a window into the personal realities and triumphs that we have witnessed through this effort and, in the spirit of this year’s World Hemophilia Day theme, share the knowledge that we have gained – that, above all else, we are all part of the same global community.